Tag Archives: Stem Cell Transplant

Monday February 19, 2018 The day began at 6AM with me waking up so super excited I could hardly contain it.  I am so ready for stem cell harvest day.  So we began today the same as the last 5 days, shots to keep those stem cells hopping.   Rocky did an amazing job each day of administering the shots carefully, completely and with the most love ever!  Rocky Rocks! Then its pack and off the our new favorite Chicago location, Northwestern Medical center.  Truthfully these folks are amazing.   Top shelf care all the way. One person nicer then the next.  First its blood work to make sure all my numbers are good enough to donate my own stem cells back to me.  The ups and downs the last two weeks of all these medications have made me a science project changing white blood counts, hemoglobin, platelets, red blood cells and…

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My very first thought this morning when I woke up, still rolling around in the bed this morning was simply, Thank God I Am A Woman!  Being a woman means I get to have a monthly visitor.  I think we used to call it “our friend” (who the hell came up with that stupid name? saving for another day).  Well without going into details about my “friend” I will simply say that it prepared me for body aches out of nowhere. A slamming in my face, take my breath away ache.  On the upside, cause you know I always have an upside, I have had experience handling the discomfort, pain and knowing that this too shall pass just like most women walking the face of the earth. My extra little pop quiz in life has been the bonus of this disease called Scleroderma.  My long (almost 14 years) history with…

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Stem Cell Transplant (SCT) Steps Steps Completed to Date: Once I found out that SCT could possibly help me lose my Scleroderma for good I… got a referral from my main Scleroderma Doc in Denver, did a phone interview with Carol at Northwestern Medical (NwM) and was asked to send paperwork on medical records for a paper review Sent paper and passed the paper review as a good potential for the still very experimental treatment, Flew to Chicago for a week of in person tests, procedures and meetings (tons of fun!) Accepted into the study and invited to become a stem cell transplant patient using my own stem cells Make plans to go to Chicago for the procedure in 2 steps: My SCT will be in two very distinct parts. Step 1 February Monday – Thursday Feb 5-8, 2018 Go to Chicago for tests, appointments and final meeting with the…

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In June of 2017 I made a decision to join a fundraising walk for Scleroderma in support of a friend.  You see even though we share this horrible disease, she had seen her disease attach her foot and in short order lose her leg.  My buddy, Eileen had the very best doctors at Johns Hopkins and if there was a way to save it I have full confidence it would have been saved. So when I saw this walk to raise money for Scleroderma was coming up in 10 days in Denver I jumped in once again.  I used to support those walks yearly but stepped away for a number of reasons none of which mattered this past summer.  I was able to attend schedule-wise and my feet worked and I had both so I decided to walk.  Up went the fundraiser page and off I went to walk. Turns…

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