Tag Archives: Friends

Yesterday, Friday 2/9/18, during a serious Chicago snow storm, we headed to the amazing hospital to begin the real work of Step 1. The first part is mobilization thanks to a huge dose of chemo.  Most of the morning was spent getting me set up, checked in and on board with a working IV to give me the medications my body needs to fight this horrible disease.  A stem cell transplant is such a new protocol and seen as a true miracle and beyond my wildest dream in the past.   There are meds to counter act other meds, meds to keep certain symptoms at bay then then there is the true poison, Chemo. Loved Nurse Emma and NP Amy who made this entire process so much less scary, talked me through everything, answered every single question we had and just were simply top shelf. I have been on chemo…

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The week has been spent here in Chicago getting all the boxes checked before I report to begin phase one of this stem cell transplant.  Making sure I am completely healthy and that my body systems can handle the stress they need to do to it to begin.   I passed.  We are a go for launch as they say at NASA. Wednesday of this week got the final thumbs up from Dr. Burt.  He answered all my questions, listened to my final concerns and basically we are ready.  Rocky and I celebrated this by heading to a great Chicago restaurant called Topo Gigio.  See a few pics of the place/food:           Got to enjoy one more day of great food, friends and love on Thursday of week one.  Had my amazing friend, Marla and her wonderful husband Stephen braved the approaching blizzard to pick us up…

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As I slowly get prepared to take on this day I can’t help but think through all I need to do and all I actually don’t need to do thanks to you.  Tomorrow I leave for Chicago to begin prep for the stem cell mobilization 2/9 (getting my stem cells psyched about leaving my body) and harvest 2/19 (when they are actually taken from my body).  People, like you all, are jumping in and doing for me things I didn’t even know I needed done. As I have been getting ready for this process I have lost count of folks who have offered help. Financial: We are blessed with a great job (Rocky) and an outstanding business (Betsy and Rocky) but the costs for curing my Scleroderma are steep and many.  Setting up a second house, having someone stay at our home here in Colorado while gone, all the co-pay’s,…

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