Still doing great, however had a couple hiccups along the way last night. Because scleroderma has already affected my heart with a condition known as pulmonary hypertension, they are being super careful and watching my heart like it belongs to a newborn child. My blood pressure spiked to 177/78 at 4:30am and the night nurse started shaking just a little. The bonus round for today’s jeopardy game was my heart rate dropped to 44. Bottom line- heart was working hard to beat very slowly.
Met with Dr. Burt this morning and instantly started a plan of action to handle all of these “minor” challenges. A few more tests, a few more meds and they are putting this humpty dumpty back together again.
On to happier news, 24 continuous hours with my lovely daughter Victoria makes the hours fly by and feel like seconds. It’s a tough way to get her undivided attention. Turns out- it works. Victoria’s presence here with me overnight allowed me to give Rocky a much deserved timeout in our beautiful home away from home.
Each day they encourage me to move and I of course have set a goal of 10 laps around the floor. I have made some nice friends here and say hi on my way. 8 laps down today, 2 more to go tonight. Netflix and daily check ins with my girls help the time pass.
If you are reading this, do me a special favor please. Tomorrow, starting at 10am CST, send up an extra prayer for the harder chemo. I am tough but it just might be tougher.
Love you all,